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Archive for November, 2022

Day of Joy

November 4th, 2022 at 07:26 pm

Today is a day of Joy and I have been blessed.  About a year ago my DH underwent genetic testing and was confirmed to have a specific mutation that he inherited from his mom, which lead to his retinitis pigmentosa.  This mutution is inherited in an autosomal dominant manner meaning that any child we had would have a 50% chance of inheriting it and having RP.  

When we had children 13+ years ago we had no idea what the mutation was and there was no way of knowing.  Testing was not advanced enough to genetically screen and find the mutation.  Fast forward to now and due to advances they knew where to look and last Christmas his diagnosis was confirmed.  He had been told since around age 12 when the dr was able to observe the RP phenotype.  

The fact we were told 13 years ago we would know around now, meant we've been waiting on pins and needles.  We've been waiting to see if any dr would be able to look into our kids eyes and tell us if they had it.  I know my DH has been worried, especially as he has aged and things have become more difficult for him.  The greatest fear and worry for a parent is the healthy and well being of your children.  

So a few months ago we were approved that insurance would test our kids for the mutuation.  We actually had been ready to pay out of pocket but the eye dr suggested we try insurance and she turned in the paperwork.  

It turns out both our kids are negative for the mutation.  They each had independently a 50/50 chance of having the mutation and being positive for RP.  So for DH to have two children not inheriting the mutation is amazing.  I had tears of joy when the dr called me.  

What a wonderful day.

I must be going crazy

November 3rd, 2022 at 07:34 pm

I swear I'm going crazy with how fast prices of groceries are going up.  I swear my CC bill, which I pay off every month is getting higher.  We really are making a super big conscious decision to eat out once week and cut back on take out.  So I've been cooking very consciously every meal even on weekends. 

But perspective for eating out this weekend Sunday dinner it was $160 for chinese takeout for 6.  That meals should not have been that much and we had some leftovers enough for 2 lunches (DH and I each).  The weekend before we paid $150 for brunch at a restaurant for the 4 of us.   We had 4 meals, each averaging around $21-23, 2 alcoholic and 2 non-alcoholic drinks, 6 deviled eggs appetizer (around $15) and that's it.  $150 for 4 of us tax and tip.  That was our meal out. Monday halloween I bought a papa murphy's cook yourself XL pepperoni sausage pizza thin crust 16" was $10 plus breadsticks $6.99 and it cost $18.17 for it and I ordered online and picked up from a cart without a tip.  That was one meal and we had no leftovers for the 4 of us and the kids were a bit hungry after trick or treating.

So the expense of eating out is out of control.  And that's what has lead to cooking all the time.  But groceries I can't get over how much I'm spending.  I can tell when I can't walk out of costco for less than $200.  Then adding on other stores makes it ridiculous. I pay $12 for 2 gallons of lactose free milk from costco.  Eggs at walmart are $9 for 60 and the cheapest.  Chickenthighs are $3/lb for blsl thighs and they still had bones and tons of fat.  And the fresh veggies?  Or my family loves mushrooms and it's $6+ a pound.  And they eat a lot of veggies each meal.  Brussell sprouts tonight are $3/lb and I bought a 2 lb bag.  Last night it was a bag of Bok Choy that was $8 at $3.99/lb for 2 pounds.  Add in the fresh fruits and I'm making the kids lunches everyday (it was free last year and I refused to make lunches).  They hate school lunches both of them, but occasionally when things are nuts in the morning they have to suffer with school lunches.  They pay $4.25 a school lunch and my DK say it's not enough food!  This I hear from other parents as well.  

I will admit we don't have to eat what we eat and I probably should scale back on what I buy.  But I feel like we already are not eating out so scaling back on groceries seems harder than not eating out.  I'm trying to be very conscientious and not waste any food and usually we are very good at this.  I repurpose all rice into fried rice, i make broth from chicken and beef bones and use that to make congee.  I make a lot of stuff from scratch including I've been making sourdough bread again.  

But the prices of food just seems to rise.  I can't get myself to garden I hate it.  I probably need to start though even in pots.  Have you noticed the food prices?